Tag Archives: CVICU

New Perspective, New Goals

Today marks one month since having open-heart quadruple bypass surgery, also known as CABGx4. And I am still amazed by the fact that a team of surgeons cut me open, fixed my heart, and put me back together.  I’m still trying to wrap my head around it- how that all works, how it’s even possible to do these things.  Every time I think about it, I am reminded of how lucky and blessed I am.  I am humbled and sometimes get emotional as all the different possibilities of the last month play out in my head.  Open heart surgery is the kind of event that brings into focus a new perspective.  At least for me, anyway, it has.  And the long, boring recovery forces you to reevaluate your goals and make new ones. 

The last month has been quite a rollercoaster ride.  It’s been trying, depressing, and boring with seemingly never-ending days.  But it’s also been good in some ways.  I have a new lease on life.  I have been forced to slow down and take inventory of what is important to me.  I’ve made new goals.  And I have already exceeded my own expectations in this first month of recovery.  For example, on the first day of recovery, while still in the hospital, I could barely walk 20 steps.  And I’m still mad at them for making me get out of bed on Day 1.  Fast forward to Day 30: I walked 1.25 miles by myself.  It was at a decent pace, took me 30 minutes to do the loop in my neighborhood.  And I felt pretty good after.  If you had told me on the first day that I’d be able to walk over a mile by myself in one month’s time, I would not have believed you.  Day 1 was overwhelming and nothing seemed possible. 

I still have a couple weeks of restrictions for this first six weeks of recovery.  I’m limited in how much I can pick up; nothing more than a gallon of milk.  My movements are limited; still not supposed to raise my hands above my shoulders or bend over to pick up anything off the floor.  My activities are limited; still not supposed to do any housework or yardwork.  This level of boredom is cruel and depressing.  But I have been testing my limits the last couple weeks as I’ve felt better.  I’m not doing anything that hurts or doesn’t feel right, but I am progressing nicely.  I can load the dishwasher now.  I can feed the dogs now because I’m not uncomfortable bending down to the food container.  I can make my own lunch and do some light cooking.  All these little victories are adding up and creating a self confidence that was absent one month ago.  I’ve come a long way in one month and am doing much better than I imagined. 

I have a group chat on Facebook with my kids.  About two to three weeks ago I messaged them that I was now able to shower by myself without assistance.  A few days after that I shared with them that I had made my own lunch.  Days after that, I made a full dinner with some help from my wife.  The little steps of progress were very pleasing and boosted my morale.  Little goals, little victories.  And those lead to bigger goals and bigger victories.  I’m 54 years old but some of my goals early on in my recovery have been on the level of a four-year-old trying to impress his parents.  “Look, mom, I went potty by myself.”  Or “Look, dad, I put my shoes on by myself.”  I’m having to change my perspective about the goals I make.  And this part is very humbling to me.

Today my goals are to walk at least 5,000 steps per day.  I’ve achieved that a few times in the last couple weeks and this week I have done it five days in row so far.  I also want to walk the 1.25-mile loop in my neighborhood every other day.  Next week I’ll look at doing a little more if I feel like I can.  I don’t want to overdo it, but I don’t want to be stagnant if I’m capable of doing more.  For a long-term goal, there is a 5k coming up in March of next year that some of my kids are involved in that I would like to be part of.  That gives me six months.  I don’t know if I’ll run it or walk it, but I will finish it.  Not related to the heart issue, it’s been a long time since I’ve been able to run due to foot issues, including having to get an artificial joint put in my right foot.  Maybe I’ll run that 5k, maybe I’ll only be able to walk it, but I will be there. 

I’m still in some pain, especially in the leg where they harvested the vein to do the grafts on my heart.  I still have problems getting comfortable when I go to sleep and sometimes wake up in excruciating pain because I rolled or moved wrong in my sleep.  A deep cough or hard sneeze feels like someone is trying to open my chest with a crowbar.  And hiccups are horrible.  But I still think the hardest part is the boredom.  I think that will get better in a couple weeks when these initial restrictions go away and the doctor tells me where I am and what I am allowed to do for the next phase of recovery.

My wife is an absolute saint for taking care of me.  And even more so for putting up with me.  I am irritable, moody, and hard to deal with sometimes.  It’s been one month since surgery, but it’s been one month plus one day since I quit smoking.  I think I’m handling that fairly well for the most part.  But I also still get a craving for a cigarette once in a while and I can be a real jerk when the craving is getting the best of me.  I quit smoking “cold turkey” once more than 20 years ago and that lasted for six years, so I know I can do it.  I think that if I weren’t so restricted in what I can do currently, I might already be past the hard part of quitting.  I’ll get there. 

One month down.  Many more to go.  I think the hardest part of recovery is now behind me.  The first week and a half of not being able to do most anything for myself was not fun.  I don’t like being completely dependent like I was.  But now I’m feeling pretty good.  I am able to do more than I thought I would at this point in my recovery.  My follow-up appointment with the surgeon was great, everything is as it’s supposed to be.  The scar on my chest looks good.  Everything is healing as it should.  I’ll find out more next week when I see my cardiologist.

Thank you to those who reached out with well-wishes and prayers.  I felt the love.  Thanks for stopping by Story of My Life and being part of my journey.  Good Day, God Bless.

Dave

The Frist 36 Hours

Most of this story is true, I think.  Some of it was hallucinated.  A portion of it had to be told to me because I had no recollection of what was going on during part of it.  Some of it was dreamt and some of it was just there when I would close my eyes, like a video that only I could see playing on my eyelids, all while being wide awake.  None of the first 36 hours or so after I had open-heart surgery was pretty.  For a bit, I didn’t know what was real or what was being made up in my drug-induced imagination.  And I have no idea what all medications I was on at any given time during or following surgery, but I think the combination of all those drugs made my comprehension of current events questionable and my memory of those events a little whacky.  But this is how I think it all happened.

The first thing I remember after surgery was waking up with some kind of endotracheal tube in my mouth running down my throat.  I don’t really remember the tube being removed, but I do remember the pain from the tube being removed.  It hurt my throat.  I also remember darkness and calling out for help.  I remember being scared, but I couldn’t remember why I was there or how I had gotten to where I was.  At that point, so I was told later, I became uncooperative and combative with the nursing staff.  I don’t remember that, but I believe it because I can remember how scared I was.  I do remember accusing the nurse of purposely trying to let me die because she wasn’t helping me.  That’s what I thought anyway.  But of course, she was helping me, I just couldn’t see it.  I remember asking and begging for them to let me see my wife.  My wife was by my side that whole time, holding my hand.  But I couldn’t recognize her and, according to her, I thought she was trying to kill me as well.  All of this was in the first few hours of being moved from surgery to the Cardiovascular Intensive Care Unit (CVICU).

The next little bit of time would not get any better.  I found a new level of pain as the different medicines wore off following surgery.  This is a pain scale that replaces the old 0-10 scale that a doctor would use to ask you to rate your pain.  There is not a cap on this newfound scale, like with the number ten on the old one.  This new pain scale will go as high as you can handle it, and then some.  I honestly can not explain the intensity of the pain, especially when an unexpected cough or sneeze would blindside me.  This pain made it impossible to be comfortable.  It was difficult to sleep, to sit up, or to have a conversation.  Breathing hurt, swallowing hurt, and most other movements brought pain in ways I never before imagined.  I’ve always had a high tolerance for pain, but this was rough.  Thankfully, this new level of previously unexperienced pain only lasted a few days. 

Even with all the pain, the tricks my mind were playing were even worse.  Sleep would only last a minute or two at a time.  The dreams were so disturbing I would wake up trying to yell.  I did tell my wife about two of the dreams, the least disturbing of them, but I won’t be discussing any of that content here.  It’s a little scary to me that my mind came up with some of the images in those dreams.  And just as bad were the images while awake, when I would close my eyes for a short rest.  The colors and distorted scenes that were waiting for me with each prolonged blink is what I imagine Hell looks like.  I’ve served in two wars and have a few images that are forever etched in the dark, hidden parts of my mind.  Nothing I saw at war, not even my worst memory of war, can compare to the complete void of humanity that my mind was manufacturing for me to see.  I have no idea how my mind could possibly create such chaos that felt so real and imminent.  The dreams while asleep and the images my mind created while awake were bad.  Now add hallucinations to the tricks my mind was playing.  I have memories of and was also told by my wife later that I kept asking who was walking around me, touching me on my arm.  I kept thinking I was seeing someone walking around in my room.  When I would ask, my wife would point out that we were the only ones in the room, there was no one else there.  I don’t remember what their faces looked like, but I promise I saw people in my room that apparently weren’t real.  And I felt these imaginary people touch my arm multiple times.  I have no rational explanation for anything in this paragraph. 

My Worst War Memory

Somewhere around the second day after surgery, we had to address a minor complication called postoperative ileus.  That means my stomach didn’t “wake up” after surgery.  There was no movement down there.  Because of that, the doctor ordered an NG tube (Nasogastric tube).  Up the nose, down to the stomach.  It was used to drain the contents of my stomach.  This complication cost me two extra days in the CVICU.  I don’t remember the tube being put in.  I remember telling the doctor later that if they pulled it out, they better be sure of it because I would fight anyone that tried to put it back in.  I guess I remembered it being put in at the time, while in the hospital, but I have no memory of it now.  But I remember how miserable I was.  I still had chest tubes from surgery.  I had oxygen going in my nostrils.  I had more IV’s than I could count.  And the icing on the cake of misery was having that tube in my nose.  I was truly hating life for a brief moment.

I think the first 36 hours after surgery were the most miserable, most scared I’ve been in my life.  In my research leading up to having open heart surgery, the thing that worried me the most were the stories of recovery, not the actual surgery.  Recovery is a long process.  There are countless do’s and don’ts.  Restrictions on lifting, restrictions on movements.  Restrictions on food and medicines.  I never imagined that the initial recovery would include the mind tricks I suffered through.  Thank God that went away after a few days.  The memories of those twisted thoughts and images still choke me up, but at least they stopped.  Boredom is the hardest part now.  Days seem to drag on.  I want to do things, but I know I can’t if I want my recovery to go smoothly.  My wife has been amazing.  She’s doing all my chores and hers.  She’s taking care of me even when I’m difficult and unhappy about being unable to do things for myself.  I’m irritable.  I’m a little depressed.  And I haven’t had a cigarette in over two weeks.  My wife is a saint for putting up with me.  She is my reason for wanting to get better and to do better. 

I feel like the hardest part is behind me.  I’m still confused by the first 36 hours.  I’m actually still a little disturbed by the first 36 hours.  I’m sure it was a combination of shock, pain, and medications.  But that still doesn’t make it any less troubling in my mind.  Thank you for suffering through this post with me today.  I believe most of it to be true even if I don’t remember it all.  Good day, God bless.

Dave