The Frist 36 Hours

Most of this story is true, I think.  Some of it was hallucinated.  A portion of it had to be told to me because I had no recollection of what was going on during part of it.  Some of it was dreamt and some of it was just there when I would close my eyes, like a video that only I could see playing on my eyelids, all while being wide awake.  None of the first 36 hours or so after I had open-heart surgery was pretty.  For a bit, I didn’t know what was real or what was being made up in my drug-induced imagination.  And I have no idea what all medications I was on at any given time during or following surgery, but I think the combination of all those drugs made my comprehension of current events questionable and my memory of those events a little whacky.  But this is how I think it all happened.

The first thing I remember after surgery was waking up with some kind of endotracheal tube in my mouth running down my throat.  I don’t really remember the tube being removed, but I do remember the pain from the tube being removed.  It hurt my throat.  I also remember darkness and calling out for help.  I remember being scared, but I couldn’t remember why I was there or how I had gotten to where I was.  At that point, so I was told later, I became uncooperative and combative with the nursing staff.  I don’t remember that, but I believe it because I can remember how scared I was.  I do remember accusing the nurse of purposely trying to let me die because she wasn’t helping me.  That’s what I thought anyway.  But of course, she was helping me, I just couldn’t see it.  I remember asking and begging for them to let me see my wife.  My wife was by my side that whole time, holding my hand.  But I couldn’t recognize her and, according to her, I thought she was trying to kill me as well.  All of this was in the first few hours of being moved from surgery to the Cardiovascular Intensive Care Unit (CVICU).

The next little bit of time would not get any better.  I found a new level of pain as the different medicines wore off following surgery.  This is a pain scale that replaces the old 0-10 scale that a doctor would use to ask you to rate your pain.  There is not a cap on this newfound scale, like with the number ten on the old one.  This new pain scale will go as high as you can handle it, and then some.  I honestly can not explain the intensity of the pain, especially when an unexpected cough or sneeze would blindside me.  This pain made it impossible to be comfortable.  It was difficult to sleep, to sit up, or to have a conversation.  Breathing hurt, swallowing hurt, and most other movements brought pain in ways I never before imagined.  I’ve always had a high tolerance for pain, but this was rough.  Thankfully, this new level of previously unexperienced pain only lasted a few days. 

Even with all the pain, the tricks my mind were playing were even worse.  Sleep would only last a minute or two at a time.  The dreams were so disturbing I would wake up trying to yell.  I did tell my wife about two of the dreams, the least disturbing of them, but I won’t be discussing any of that content here.  It’s a little scary to me that my mind came up with some of the images in those dreams.  And just as bad were the images while awake, when I would close my eyes for a short rest.  The colors and distorted scenes that were waiting for me with each prolonged blink is what I imagine Hell looks like.  I’ve served in two wars and have a few images that are forever etched in the dark, hidden parts of my mind.  Nothing I saw at war, not even my worst memory of war, can compare to the complete void of humanity that my mind was manufacturing for me to see.  I have no idea how my mind could possibly create such chaos that felt so real and imminent.  The dreams while asleep and the images my mind created while awake were bad.  Now add hallucinations to the tricks my mind was playing.  I have memories of and was also told by my wife later that I kept asking who was walking around me, touching me on my arm.  I kept thinking I was seeing someone walking around in my room.  When I would ask, my wife would point out that we were the only ones in the room, there was no one else there.  I don’t remember what their faces looked like, but I promise I saw people in my room that apparently weren’t real.  And I felt these imaginary people touch my arm multiple times.  I have no rational explanation for anything in this paragraph. 

Somewhere around the second day after surgery, we had to address a minor complication called postoperative ileus.  That means my stomach didn’t “wake up” after surgery.  There was no movement down there.  Because of that, the doctor ordered an NG tube (Nasogastric tube).  Up the nose, down to the stomach.  It was used to drain the contents of my stomach.  This complication cost me two extra days in the CVICU.  I don’t remember the tube being put in.  I remember telling the doctor later that if they pulled it out, they better be sure of it because I would fight anyone that tried to put it back in.  I guess I remembered it being put in at the time, while in the hospital, but I have no memory of it now.  But I remember how miserable I was.  I still had chest tubes from surgery.  I had oxygen going in my nostrils.  I had more IV’s than I could count.  And the icing on the cake of misery was having that tube in my nose.  I was truly hating life for a brief moment.

I think the first 36 hours after surgery were the most miserable, most scared I’ve been in my life.  In my research leading up to having open heart surgery, the thing that worried me the most were the stories of recovery, not the actual surgery.  Recovery is a long process.  There are countless do’s and don’ts.  Restrictions on lifting, restrictions on movements.  Restrictions on food and medicines.  I never imagined that the initial recovery would include the mind tricks I suffered through.  Thank God that went away after a few days.  The memories of those twisted thoughts and images still choke me up, but at least they stopped.  Boredom is the hardest part now.  Days seem to drag on.  I want to do things, but I know I can’t if I want my recovery to go smoothly.  My wife has been amazing.  She’s doing all my chores and hers.  She’s taking care of me even when I’m difficult and unhappy about being unable to do things for myself.  I’m irritable.  I’m a little depressed.  And I haven’t had a cigarette in over two weeks.  My wife is a saint for putting up with me.  She is my reason for wanting to get better and to do better. 

I feel like the hardest part is behind me.  I’m still confused by the first 36 hours.  I’m actually still a little disturbed by the first 36 hours.  I’m sure it was a combination of shock, pain, and medications.  But that still doesn’t make it any less troubling in my mind.  Thank you for suffering through this post with me today.  I believe most of it to be true even if I don’t remember it all.  Good day, God bless.

Dave

Finally!!!!

I’ve written many times over the years about my struggles with the Department of Veterans Affairs.  Finally, one of my ongoing battles with the VA is coming to an end.  I’ve waited more than six years to get my foot fixed and it was operated on yesterday.  Better late than never I suppose.  But that was more than six years of extra pain to deal with.  Fighting with the VA about what you’ve earned and deserve can, and usually is, an exhausting undertaking. 

In 2013, I was in the belly of a plane loading bags for our trip to Ft Hood for pre-deployment training prior to heading to Afghanistan.  We were tossing bags to each other as they come up the conveyor ramp.  Toss, catch, turn, toss, turn, catch repeat.  As I went to catch one of the duffle bags, it hit my chest, slipped through my arms, and slammed my foot.  The Kevlar helmet that was packed in the top of the bag crushed my toe.  Turns out it wasn’t broken, but it was definitely not well.  It’s been swollen ever since.

After arriving at Ft Hood, “Doc” sent me to get it looked at.  X-rays showed it was not broken, but had in fact exacerbated an issue that I didn’t even know I had.  My foot had good days and bad days after the injury.  Sometimes it was bearable and sometimes it was excruciating.  And without a doubt, having to favor that foot created other issues.  Like when I injured my hip getting out of a helicopter and rocky ground. Now I was having to favor my right foot and left hip.  It was bad enough that the doctor at my little base wanted to send me to Germany for treatment then home.  I declined.  I wanted to finish what I started with my fellow Soldiers that we began the previous year.  But if I had taken the doctor’s advice, I wouldn’t have had to wait six years to get my foot fixed.  But I don’t regret my decision.

The hardest part in this battle with the VA had been getting them to acknowledge that my injury was service-connected.  Even with medical documents from the hospital at Ft Hood, the VA was denying that my injury was service-connected.  It wasn’t until 2018 that the VA sent me a letter saying (and I’m paraphrasing) “Oops, my bad, your foot is our problem.”  That’s what I’ve been telling you for years!  With the documentation I had, it really should have been an open and shut case.  But, being a reservist, sometimes we get swept under the rug.  And the Army didn’t do me any favors.  As we were out-processed at Ft Hood after coming back from Afghanistan, we were told that unless it’s a life-threatening injury we would be passed on to the VA.  I was examined before leaving Ft Hood and the doctor told me what needed to be done. He wrote it down.  It was in my records.  But the Army didn’t want to do it and the VA denied that it was their problem to fix.

Eventually I wasn’t able to get around like I used to.  Couldn’t run.  Couldn’t pass the Army physical fitness test.  I was eventually medically retired, which turned out to be a good thing.  But all the physical issues and poor self-image I developed from my physical decline only added to the downward spiral I was going through in life.  That led to a failed suicide attempt and being diagnosed with PTSD, major depression, and all the wonderful things that go along with that.  The deterioration of my body played a big role in my mental health.  The Army not fixing me and VA denying me made it feel like an insufferable weight.  I hit rock bottom.  Thankfully I failed and am still here today.

Yesterday, the doctor cut open my big toe, shaved some bone, took some bone out, sewed me back up.  Not only is my foot fixed and on its way to recovery to where I can hopefully fully function again, the VA hooked me up with a civilian doctor.  Turns out the Covid problem shut down all non-life-threatening surgeries being done by the VA when I started this process.  My VA pediatrist asked me if I would like them to see if a civilian doctor would do it.  For those of you that have dealt with military or VA doctors I don’t need to tell you how fast I jumped at that option.  I know I painted that last sentence with a wide brush, but there are more bad doctors than good ones at the VA so it’s easy to lump them all in the same group of being subpar. 

I’m off for at least the next three weeks from work.  I’ve been saving my vacation and sick leave for this.  I can’t drive until after my second follow-up appointment when the doctor will remove my stitches.  I’ll just be sitting on the couch eating snacks if you need me.  I have 150 channels or so on cable, a couple streaming sources, and more DVDs than anyone should own in 2020.  Who wants to bet I can’t find anything to watch?  LOL.  I’m getting around well on my crutches.  Last time I was on crutches they were made of wood.  I guess I’m old now.  The surgery shoe is not comfortable, but I have to leave it on until the stitches come out.  I’ll be sleeping on the couch because I don’t want to climb the stairs to the bedrooms for a few days. 

I want to thank my daughter for babysitting me yesterday, getting me to and from surgery, picking up my meds, making me lunch.  My girlfriend is also taking care of me and spoiling me.  I’ll be back to doing a few easy things around the house in a few days.  But I’m taking advantage of this downtime for the time being.  I will rest my body and let it heal.

Healing is important.  And it’s all tied together, both physical and mental.  I had to learn that a few years ago the hard way.  And I do much better now in my understanding that you must take care of both.  Each has its own time table which can be frustrating because physical and mental injuries can’t always heal at the same pace but they can have a huge impact on each other.  Take care of yourselves.  Take time to let yourself heal when needed.  And go easy on yourself when it seems overwhelming.

Thanks for stopping by today.  Good day, God Bless.

Dave